ConnieJo
@conniejo
1Following
1Follower
Monticello, IN USA
Joined Jun 6, 2007
Please pray for my 4yr old Skylar~Jade...she is dying from an unoperable brain tumor(DIPG-diffuse intrinsic pontine glioma)...She was dx May 17,2006..her drs have given her only 2-4weeks to live...you can read her story and leave her prayers on her website: www.caringbridge.org/visit/skylarjademaxson
ALSO www.myspace.com/angelsforskylarjade
Also if anyone has a child with this tumor or knows of one please e-mail me or leave the info on her site...so we can pray for them..we are in the process of starting a website for pontine glioma children...and would like them to be included so all the parents and families of these children can keep in touch with each other and learn everything we can...since 'these'children on average only live 1year from dx....thank-you so much....God Bless You All....ConnieJo
I made a photo slideshow of some of the pictures of Skylar~Jade's journey this past year...to see it copy and paste this link
http://www.onetruemedia.com/otm_site/view_shared?p=2def5b7d8b054f731ddfaa&source=category&category_id=12
(It's the first time I have ever made one...hope you enjoy it...leave a comment and let me know...thanks so much
The name of the song in the video is "AMAZING" by Janelle
My Music
1 song ·
1 artist
ANOTHER NEW WEBPAGE!!!
Jun 14, 2007
Skylar~Jade is still fighting to live....Heaven is still listening Please Pray for her..... Will be posting some new pictures soon... Her newest webpage is www.myspace.com/angelsforskylarjade come visit and leave a prayer... Love and Blessings ConnieJo
